News

Translating data into impact

A recent interview highlights how WAYFIND-R is empowering the global research community. 

It supports collaborations to uncover insights from RWD for a better understanding of disease and care pathways to improve care for patients in the future. 

Poster publication

This poster describes different care pathways for metastatic lung cancer patients with actionable ALK or EGFR alterations detected by next-generation sequencing (NGS).

Dienstmann, R., et al., ESMO treatment (tx) guideline adherence in patients (pts) with lung cancer (LC) with EGFR and ALK alterations: a WAYFIND-R registry-based study

ESMO 2025, poster# 2053eP.

Poster publication

This poster describes the approach for harmonising genomic insights from clinical practice.

Courtot, M., et al., Harmonizing Genomic Insights from Clinical Practice: WAYFIND-R's Approach to Global Clinico-Genomic Data Collection and Collaboration

GA4GH 13thPlenary 2025, poster # .

Poster publication

This poster describes the framework to assess data quality at each processing step along the entire data lifecycle.

Stone, T., et al., Data quality framework for cohort discovery: Insights from the design of the global WAYFIND-R oncology real-world data research platform

OHDSI Europe Symposium 2025, poster #76.

Poster publication

This poster describes registry data collection and the data access and governance framework.

Le Tourneau C, et al., WAYFIND-R: A Global Initiative Empowering Research in Precision Oncology.

Clinical Cancer Genomics Conference 2025, poster# PP03.

Journal publication

This publication describes core oncology variables along the patient journey and critical genomic testing data.

Dienstmann R., et al., Core variables for real-world clinico-genomic data collection in precision oncology.

ESMO RWD & DO 2025.

Poster publication

This poster describes the impact of timing of next-generation sequencing (NGS) on therapy selection in lung cancer.

Dienstmann R., et al., Timing of next-generation sequencing (NGS) relative to first line therapy in lung cancer: insights from the global WAYFIND-R registry.

ISPOR Europe 2024, Poster # RWD111.

Poster publication

This poster describes next-generation sequencing (NGS) practice in the most common cancer types.

Le Tourneau C., et al., Next-generation sequencing (NGS) in routine care: Medical practice in 24 countries from the pan-cancer WAYFIND-R registry.

ESMO 2024, poster# 88P.

Submit your own research proposals

Academic researchers can submit their own research proposals to request access to data from the WAYFIND-R registry database.

We are delighted to inform that investigators and academic researchers can request access to the global WAYFIND-R database. 

Poster publication

This poster describes how research is empowered by a seamless data flow and  research-ready data

Stone T., et al., Empowering research with seamless data flow and research-ready, anonymized data in OMOP CDM: Learnings from the design of WAYFIND-R, a global precision oncology registry and research platform.

OHDSI Europe Symposium 2024.

WAYFIND-R Investigator Meeting

WAYFIND-R Meet the Investigator Onsite Meeting at ESMO 2024

At this event, investigators can get an update on the current status of WAYFIND-R and meet other investigators from around the world who are involved in this major project.

Poster publication

This poster reports the first descriptive analysis of the global WAYFIND-R cohort

Blay J.-Y., et al., WAYFIND-R: A global, real-world database of patients (pts) with a solid tumour profiled with next-generation sequencing (NGS). 

ESMO 2023, poster # 206P.

Poster publication

This poster describes socio-demographic and socio-economic characteristics of the global WAYFIND-R population

Hackshaw A., et al., WAYFIND-R: A Global, Real-World Precision Oncology Registry – Socioeconomic Features.  

ISPOR Europe 2023, poster #RWD111.

WAYFIND-R Platform Launch

Launch of the WAYFIND-R Data Sharing and Collaboration Platform! 

The WAYFIND-R team is excited to announce the launch of the WAYFIND-R Data Sharing and Collaboration Platform. This platform provides the medical and scientific community with access to high-quality data and enables research collaborations to help advance precision oncology. 

Poster publication

This poster highlights the key features of the WAYFIND-R RWD Registry for Solid Tumors with NGS Testing

Le Tourneau C., et al., WAYFIND-R: Delivering a high-quality real-world data (RWD) global registry of patients diagnosed with a solid tumor and profiled with next-generation sequencing (NGS).

AACR Annual Meeting 2022, poster #4094.

Poster publication

This poster conceptualizes the core variables within the WAYFIND-R registry and how it supports future research with a harmonized approach

Dienstmann R., et al., Conceptualization of core clinico-molecular variables for registries enrolling patients diagnosed with a solid tumor and profiled with next-generation sequencing (NGS).

AACR Annual Meeting 2022, poster #5246.

Journal Publication

This publication in the JCO Precision Oncology discusses the approach to solving the complex clinicogenomic data landscape in precision oncology and the learning from WAYFIND-R

Le Tourneau, C., et al., An Approach to Solving the Complex Clinicogenomic Data Landscape in Precision Oncology: Learnings From the Design of WAYFIND-R, a Global Precision Oncology Registry.

JCO Precis Oncol. 2022;6:e2200019.